We are ecstatic to announce that last night’s event was a huge success, with a record 458 guests at the Paris Mounties hockey game.  When we set out on this journey three months ago, we had a goal of raising $15,000, as of today, not including raffle ticket sales, Ref4Rett has raised an amazing total of $34, 366 that will all go directly towards the development of the Canadian Rett Syndrome Registry, which will directly impact future research.

We want to thank each and every person who attended the event last night in support of a cause that is so near and dear to our hearts, and helping to raise awareness.  We also want to send a special thanks to the Paris Mounties, Legends Taphouse and Todd Wood for providing us with the venue for the event and so much assistance and support.  To our sponsors, volunteers, individuals that made donations or helped to spread awareness, words cannot express the gratitude that we feel for all the support that we have received.

On behalf of our family, Elle and all the individuals living with Rett Syndrome, we thank you.

Looking for a place to go for dinner, snacks, or drinks before or after the Ref4Rett Event at the Paris Mounties game on Saturday, January 26th??   Check out LEGENDS TAPHOUSE & GRILL for great food at a great price!!  Just a minute down the road from the Brant Sports Complex (www.legendstaphouse.com).

17 game-worn Jerseys will be included as items in the Silent Auction at the Paris Mounties game on January 26, 2013.

 

Another day of feeling overwhelmed at the generosity of people!! Thank you so much to Strathroy District Minor Hockey and Strathroy Referee Association for inviting us to the 5th Annual Rocket Rally. We are so proud to announce that today’s event raised an all time high of $2236.00 for Ref4Rett.

Limited Edition 2013 Ref4Rett Official Event Pucks will be available for purchase during the event on January 26th, 2013 for $5.00 – Perfect for autographs!!

Check the link below to see the story written by Michael Peeling in the Paris Star, January 14th, 2013.

http://www.parisstaronline.com/2013/01/14/hockey-official-inspired-by-daughters-rett-syndrome

 

Feel free to send us your “sighting” picture to post….help spread the word and raise awareness for Rett Syndrome. All proceeds from the sale of the bracelets will go to O.R.S.A.

Alexander Graham Bell supporting Ref4Rett…..

 

This is Abby….she is sporting a Ref4Rett Bracelet Collar….Love it!!!

Elle and daddy….

We are thankful to the Mamow Sha-way-gi-kay-win: North South Partnership for Children courtesy of Betty-Lou Scholey, who have donated 15 aboriginal colouring books.  The books were designed by 2 native artists from the community of Sandy Lake First Nation; Bart Meekis (presently Chief) and Robert Kakegamic.

Excerpt from the book:

“Our Hope  —  At the outset of the 21^st century, maintaining and rejuvenating First Nations culture is of paramount importance to First Nations people and their leaders.  How to inform and educate First Nations youth about the need to keep their heritage alive is a major topic of discussion  in many First nations communities…….We, the “Mingqun” First Nations Artists, are trying to preserve the knowledge, beauty and diversity of our culture through our paintings.  We want to bring a deeper understanding and appreciation of the value of our Aboriginal artistic heritage to our own people and to our cultures and peoples around the world.  It is our hope that this reviewed and expanded version of our first “Mingqun” colouring book will assist us in these endeavours.”

For more information, please visit www.northsouthpartnership.com<http://www.northsouthpartnership.com><http://www.northsouthpartnership.com/

This year’s Annual Strathroy & District Minor Hockey Association Rocket Rally is scheduled for Sunday January 20, 2013 from 1 – 3 p.m. at the Gemini Sportsplex. The Rocket Rally is an annual event where SDMHA partners with the Rocket’s Jr. B Association and Rally together to show case hockey in our community and raise money for a cause or charity. This year we are rallying to support Kevin Morton and his family and bring awareness to a cause that is near and dear to his heart.

Kevin and Lory have a five year old daughter, Elle, who has Rett Syndrome. This is a rare neurodevelopment condition that afflicts mainly females (1 in 10,000 births ) and is caused by a mutation in the X chromosome. Some never develop the ability to walk or even talk.

Kevin Morton is a former resident of Strathroy, a former Strathroy & District Minor Hockey Player, a former Strathroy Referee, and currently an OHA Referee. Kevin and his wife Lory (Goulart) now reside in Paris, Ontario. His parents, Jim and Lois Morton have volunteered for Strathroy & District Minor Hockey for many, many years.

Strathroy Minor Hockey, in conjunction with the Strathroy Referees Association is pleased to announce that this year’s Rocket Rally will benefit Ref4Rett. In past years, Minor Hockey players have played against the coaching staff in a series of benefit games. This year the players will play against a team of Strathroy Referees, in the hope of creating awareness and raising funds for Ref4Rett in honour of the Morton Family.

Come and join us on Rocket Rally Day Sunday January 20, from 1:00-3:00pm at the Gemini Sportsplex, Strathroy. See you at the rink!

Yours in Hockey

Shari Terwilligar
President – SDMHA

Submitted By Shari Terwilligar on Wednesday, January 09, 2013

www.http://sdmha.org/Articles/2819/Rocket_Rally/