Happy 10th Birthday Elle!!!


Knights of Columbus Breakfast a Huge Success!!!

This mornings Knights of Columbus breakfast was a huge success with an attendance of 290 people!!!

Thank you to the Knights of Columbus Brantford volunteers for the great food, to all of our volunteers (Janine, Ilah, Michelle, Mark, Jen, Adrian, Joey, Jacob, Cassandra and Nyah) for keeping things moving and clean, and to everyone who attended for helping to make this such a success.

A very special thank you to Bonnie for putting together the raffle “basket”.

5th Annual Ref4Rett Event a Huge Success!!!!

The 5th Annual Ref4Rett was again another incredibly successful night, with over 500 people in attendance!!!! Truly amazing.

It is hard to put into words the feeling that we get when we see the Brant Sport Complex full to the brim with so many people who turned out to watch some great hockey and support Elle and Ref4Rett. We work so hard to pull this event together and when we sat in that arena on Saturday night and looked around, it left us feeling breathless and once again so proud to be a part of this special community.

To date, the 2016-2017 Ref4Rett season has raised over $25,000 and we are not done yet with the Knight of Columbus breakfast on February 5th. All of these funds are in support of Rett syndrome research in Canada and we couldn’t have done it without the support of all of the amazing people in this community.

Thank you to Todd Wood and the Paris Mounties for all of their support. The truth is that without Todd’s support we wouldn’t have the platform to even host such an event. To our event sponsors: Golden Windows Limited and Legends Taphouse and Grill and our additional sponsors Brantford Nissan, Canadian Home Inspection Services – Stewart MacNamara, Canadian Tire Paris, Kidtastic Adventures and Masonite. Thank you to Cindy Hefferan from Now & Always Special Event and Wedding Decor for donating all of the linens so that we could make the room look beautiful. Thank you to the Paris Mounties Alumni and the Ayr Centennials Alumni for agreeing to give of their time and raise money to be a part of this event. Thank you to Walter Gretzky for his surprise appearance at our event – bringing a smile to all those who met him. A special thanks to Courtney Hall for capturing many images of the night for us and to Tanya Taylor from Censational Photography for capturing moments from the night that we can’t wait to see (more photos to come). To our all of our volunteers, who without, we definitely couldn’t have made the night happen! Thank you to everyone who donated an item to the silent auction or who made a monetary donation. And last, but definitely not least, to all of the people who attended the event – none of our success could have been possible without your attendance.

A very special thank you Elle’s Rett sisters, Anna, Olivia and Marissa, for sharing this special night with us.

Since Elle’s diagnosis on October 26, 2012, we have learned to live our lives with hope and faith, and the on-going expression of support really does help to fuel our hearts and gives us the strength to continue on this journey.


Raffle Winners!!

And the winners are….

1st Prize: Anne Murchie

2nd Prize: Charlie Sayles

3rd Prize: Julia Baldwin


Thank you to all who purchased a ticket!

Knights of Columbus Charity Breakfast

We are very pleased to announce that the Knights of Columbus have decided to sponsor Ref4Rett and the Ontario Rett Syndrome Association at their upcoming charity breakfast which is being held on Sunday February 5th, 2017.  We are looking for 6-8 volunteers to assist us in serving, clearing and cleaning dishes at the event.  If you can assist, please let us know by email (ref4rett@gmail.com) or Facebook, as soon as possible.  These hours could count towards a student’s volunteer hours.

If you are not able to assist but would like to support us and enjoy some good food, breakfast is being served from 9:00 am to 12:00 pm at 12 Catharine Avenue in Brantford.  The cost is $8.00 per adult and $4.00 for children under 10.  ALL YOU CAN EAT! Invite your friends and family. Everyone’s welcome!


Maple Leafs Skate for Easter Seals Kids

This year we were fortunate enough to get the support of Easter Seals to assist with Elle’s stair lift. As a way to say thank you and to give back, this afternoon Elle and Kevin participated in the Toronto Maple Leafs Skate for Easter Seals Kids. Elle was so excited from the moment she woke up this morning to skate with the Leafs, and they did not disappoint.
Thank you to Easter Seals Ontario and to the Toronto Maple Leafs for a great afternoon! Both our girls were all smiles!!
Spoiler Alert-there may be an Austin Matthews signed jersey in the Ref4Rett Silent Auction on January 28th!! Stay tuned……

Thank You Sacred Heart Lions!!

We feel so blessed to be a part of such an amazing community. We were once again reminded of this during the month of October, as the students and staff of Sacred Heart School recognized Rett Syndrome Awareness Month.
We want to thank the Student Council for coming up with the idea of supporting Ref4Rett in the month of October. Thank you to Elle’s teacher, Miss. MacKinnon, for her leadership with the Student Council. Thank you to our principal, Ms. Mitchell, for her on-going support of Ref4Rett. A big thank you to all of the staff, the entire student body and their families, for their participation in the popcorn sales, other donations and in helping us to continue to raise awareness.
Our school has once again demonstrated the true definition of “Love Tenderly”.
Click on the link below to read the article published this week in the Brant News.

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