Cynthia Wade-Ralston – $25.00.  Congrats and Thank you!!

For a split second we get to relax… although Rett Syndrome does not go away, we feel that we’ve got our little girl back, the anti-seizure medication change seems to have been a success, there haven’t been any seizures in almost 2 months, she’s not tired and irritable anymore, she’s back…with enthusiasm for life…everyone around her notices the change….we relax…revelling in the huge success of our big event and the support and donations that keep coming….we relax….endless dinner table conversations about the event, Elle still so excited about the event and about having dropped the puck…we relax….a case conference with all her service providers, everyone so excited about the news, she’s doing so well, plans are on track…we relax….she’s lost her first tooth and the tooth fairy came and left her money – she couldn’t have been more excited….we relax….our little girl is growing up and we’ve survived another one of life’s milestones….we relax….

But then….Rett Syndrome hits us again and now what seemed like an exciting life milestone proves to be a trigger for seizure activity.   Who knew that cutting your adult teeth could be a trigger for seizures…again our little girl is taken away from us…15 seizures in a 36 hours period…exhausted, irritable and clumsy because the seizures cause paralysis which seems to take days to fully resolve.  Then a week later just as she is getting back her balance and full mobility…they strike again!!  Another 12 seizures in a 24 hour period.    NO….. Rett Syndrome does not discriminate…it didn’t matter that it was Family Day weekend and that all Elle really wanted to do was to go practice her skating….again her hopes crushed, because her legs were just not strong enough to walk, let alone skate…our little girl left disappointed, frustrated, irritable…not understanding why the seizures had to come back and we are left wondering why once again our enthusiastic, full of life little girl has once again disappeared.

As said in her own words “Seizures go away and leave Elle alone.”

Thanks to Melissa Morton (Kevin’s sister) and her friends and colleagues who have raised over $5000.00 in support of Ref4Rett. Once again, the support is overwhelming and words cannot express the gratitude that we feel.

Please check out this article for more information regarding their fundraising efforts in Bermuda.

http://www.royalgazette.com/article/20130219/ISLAND/702199974

Dale Harrison $25.00 – Congrats and Thank You!!

Maura Goulart – Congrats and Thank you!!

Janet Hart $20.00 – Congrats and Thank You!!

We had a few items that did not sell at our event, and in efforts to continue our fundraising initiative, we have decided to create an Online Silent Auction on Facebook.   We are hopeful that this will allow us to sell these items that were so generously donated, while also allowing people who were not able to make the event feel apart of this amazing thing – Ref4Rett!!

The 8 items available are located in the “Online Silent Auction” Photo Album. Bids can be made in the comment section of each picture. Minimum bids for all items is $20.00 and subsequent bids increments a minimum of $1.00.

Please feel free to share this new with your friends!

To see the items, please Click Here.

Please see the Online Silent Auction Rules below for further details.

ONLINE SILENT AUCTION RULES

1. Bidding will be open from 11 p.m. February 9th, 2013 until the end of the final item close at 9pm February 28th, 2013.

2. By bidding in the Online Silent Auction, each bidder agrees to these auction rules.

3. Ref4Rett reserves the right to add or withdraw items, without notice, to or from the Online Silent Auction.

4. Auction item purchases are final. No returns or exchanges will be issued, nor is it possible for expiration dates to be extended. All items are “as is”. All provisions listed in the certificates are subject to availability.

5. Ref4Rett provides no guarantees, warranties or servicing of auction items and is not liable for any personal injury or damage to property that may result from the use of the item or service sold.

6. To make a bid for an Online Silent Auction item, simply type your name, and the amount you wish to bid in the comment section of the item picture on Facebook. The opening bid on each item must be at least the minimum bid of $20.00. Each subsequent bid must follow the minimum increment of $1.00. Any bids not adhering to this format will be declared invalid and voided.

7. In order to maintain confidentiality, bidders will need to email their contact information; including phone number to ref4rett@gmail.com.

8. There is no “upper limit” for your bids!

9. You may bid on any item in any Silent Auction section until the item is closed. Item #1 will close February 13th, Item #2 will close February 16th, Item #3 will close February 18th, Item #4 will close February 20th, Item #5 will close February 22nd, Item #6 will close February 24th, Item #7 will close February 26th, Item #8 will close February 28th. All items will close at 9pm of the listed date. The official time will be based on the personal computer in the Morton home.

10. Once the auction is declared closed, the last bid entered on the comment section that adheres to the designated increment shall constitute the winning bid and will so be marked. In the event of a dispute, the Online Silent Auction Chair (Kevin Morton) will act as the final authority.

11. Winning Bids will be posted on Facebook and onwww.ref4rett.com within 30 mins of the closed.

12. The winning bidder will be contacted to arrange payment (cash, cheque or e-transfer). Once payment has been processed, arrangements for pick-up/shipping of the item will be determined.

13. Payment for items purchased must be made in full. We accept cash, or a personal cheques made payable to “O.R.S.A”. Invoices will be available upon request.

14. Any item left unclaimed will be offered to the next highest bidder and sold.

Happy Bidding!!!

Click the date to view the gallery.

Photos courtesy of Kara Wilson of Wilson Sports Photography (www.facebook.com/WilsonSportsPhotography)

Check out the following articles and pictures from the event on Saturday.

http://www.parisstaronline.com/2013/01/28/ref4rett-raises-more-than-30000-for-orsa
http://www.brantnews.com/news/ref-4-rett-fundraiser/

http://www.brantfordexpositor.ca/2013/01/28/mounties-gear-up-for-navy-vets

We are ecstatic to announce that last night’s event was a huge success, with a record 458 guests at the Paris Mounties hockey game.  When we set out on this journey three months ago, we had a goal of raising $15,000, as of today, not including raffle ticket sales, Ref4Rett has raised an amazing total of $34, 366 that will all go directly towards the development of the Canadian Rett Syndrome Registry, which will directly impact future research.

We want to thank each and every person who attended the event last night in support of a cause that is so near and dear to our hearts, and helping to raise awareness.  We also want to send a special thanks to the Paris Mounties, Legends Taphouse and Todd Wood for providing us with the venue for the event and so much assistance and support.  To our sponsors, volunteers, individuals that made donations or helped to spread awareness, words cannot express the gratitude that we feel for all the support that we have received.

On behalf of our family, Elle and all the individuals living with Rett Syndrome, we thank you.