8th Annual Ref4Rett Event

Last night the 8th Annual Ref4Rett event was held at the Brant Sports Complex and it proved to be another amazing night – with over 480 people in attendance at the Mounties game and over 100 people who participated in our first ever Skate-a-ton.

A special thank you to Todd Wood and the Paris Mounties for allowing us to be a part of their last regular season game!

Thank you to all of those who participated in the Skate-a-ton.  The kids enjoyed being able to skate and chat with the Mounties – there were even a few races on the ice.  This was Elle’s first trip to the arena since her surgery, and she couldn’t get there fast enough.  She loved being able to skate around with her friends – you will notice a smile in every photo!

Thank you to all of our volunteers, without whom, this night wouldn’t have been possible. Thank you to our MC, Andy Thibodeau. Thank you to Cindy Hefferan, from Now & Always, who provided the linens for the hall. Thank to Tanya Taylor from Censational Photo, for capturing the fun.  Thank you to everyone who donated an item to the silent auction, all of those who sponsored someone skating in the Skate-a-ton and to all of our sponsors. The event is truly a culmination of everyone coming together for one cause.

We are so proud to report that this year’s event has raised over $16,000!!!!  All of these funds will be directed towards the Ontario Rett Syndrome Association’s Hope Fund – which is dedicated to Canadian Rett syndrome research.  In the summer of 2020 there will be the first ever Canadian clinical trial for Rett syndrome.  This year we will be requesting that the funds raised at this year’s event be directed to assist families wishing to participate in the trial, in an effort to offset some of the cost associated with a clinical trial.  It is our hope to create accessibility and equity for all those wishing to participate.

Thank you to everyone who came out to support us and celebrate what is always magical night for our family!

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