One month….today we reflect on one month since Elle’s surgery.   We would be lying if we didn’t admit that the last month has been a bit of a blur.  There has been many sleepless nights, lots of follow up appointments, lots of games of UNO and many, many naps.

Elle’s recovery is going as planned.  Her back is healing nicely and Tylenol seems to manage any discomfort that she may have.  Elle’s biggest challenge has been foot pain.  Foot pain which has kept her up many nights and which makes walking difficult.  The doctor’s have called it neuropathic pain, which can happen after surgery and which should resolve itself over time.   Elle also tires easily and asks to lay down every couple of hours.

Elle’s spirit however, has come through unscathed.   She is motivated to get better.  She walks around the house, and  has just started to do some gentle exercises to strengthen her legs and core.  She often asks to get back to school , to go shopping and to go to the rink to watch her sister play hockey.  Her new line is “my back is all better – I go to Ref4Rett”.  We are hopeful that she will make an appearance, even if for a short time.

We want to thank everyone for all the love and support that we have received.  The thoughts, prayers, well wishes, visits and care packages have helped us all get through this tough time.

Looking forward to seeing those of you who are able to make it to Ref4Rett next Saturday.