Once upon a time we were two pretty private individuals, only sharing the intimate details of our lives with those closest to us. However once Elle was diagnosed with Rett syndrome we realized that privacy wasn’t going to help us in our quest to raise awareness and the hope of one day finding a cure. It is for that reason that we agreed to be a part of this community magazine and share our story. Today on October 1st, the first day of Rett Syndrome Awareness month we share this story with all of you.
Thank you to Kari Raymer Bishop for helping us share our story and raise awareness.