October 1, 2015 by ref4rett
October is Rett Awareness month and we would like to start the month by sharing with a story written by Gina Mueller from Portland, Oregon about her family’s journey with Rett syndrome. Like us, they have two beautiful daughters, one with Rett syndrome. Even though their daughter is impacted differently by Rett syndrome than Elle, there are a lot of similarities in the struggles and feelings that we as parents are constantly facing as a result of this devastating syndrome.
Thank you Gina for putting into words, what we as Rett parents also experience, you can read her powerful story, The One Thing I Want you to know about Parenting My Child with Rett Syndrome, by clicking on the link, http://themighty.com/2015/09/the-one-thing-i-want-you-to-know-about-parenting-my-child-with-rett-syndrome/.