October is Rett Awareness Month!

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October 1, 2015 by ref4rett

October is Rett Awareness month and we would like to start the month by sharing with a story written by Gina Mueller from Portland, Oregon about her family’s journey with Rett syndrome.  Like us, they have two beautiful daughters, one with Rett syndrome.  Even though their daughter is impacted differently by Rett syndrome than Elle, there are a lot of similarities in the struggles and feelings that we as parents are constantly facing as a result of this devastating syndrome.

Thank you Gina for putting into words, what we as Rett parents also experience, you can read her powerful story, The One Thing I Want you to know about Parenting My Child with Rett Syndrome, by clicking on the link, http://themighty.com/2015/09/the-one-thing-i-want-you-to-know-about-parenting-my-child-with-rett-syndrome/.

Kevin Morton_842667


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2016-2017 Season
As of February 22, 2017

2015-2016 Season - $27,381
2014-2015 Season - $33,465
2013-2014 Season - $56,117
2012-2013 Season - $48,166
Total Raised - $196,295

Rett Syndrome Charity

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