As we approach the one year anniversary of Elle’s diagnose and in that October is Rett Awareness month, we felt that it is the perfect time to launch the 2013-14 fundraising season, which will feature our signature event on February 1, 2014. The Paris Mounties will be supporting the 2nd Annual Ref4Rett Event and the Ontario Rett Syndrome Association (O.R.S.A.) at their last regular season home game against the Burford Bulldogs. Game time is 7:30 at the Brant Sports Complex in Paris, ON. This event will consist of a raffle and a silent auction, with a goal of raising $30,000.00. All funds raised through donations, sponsors and the silent auction will be dedicated to research, specifically towards the continued development of a National Registry for Rett Syndrome. The establishment of the registry is important to families across Canada because future drug trials can only be implemented in Canada if there is an approved registry.
In order for this event to be successful and to help us realize our goal, we are looking for event sponsorships, silent auction items or donations of any amount. We can be contacted at ref4rett@gmail.com for more information. You can also follow this link to donate now, http://www.rett.ca/index.php/shop/ref4rett/.
Thank you kindly in advance for your support in this endeavour.
REF4RETT 