This weekend, Lory, the girls and I are heading to Richmond Hill to participate in the 9th Annual Run4Rett. We are looking forward to having a fun family day, getting some exercise (1km Walk/Run), meeting other families affected by Rett Syndrome, and raising awareness for the Ontario Rett Syndrome Association. In preparation for the run, we designed a custom t-shirt that we are going to be wearing in honour of our angel Elle, and to represent Ref4Rett. “Keep Calm and Cure Rett” is intended to raise awareness for Rett Syndrome, but also to let people know that we believe that finding a cure for Rett Syndrome is a possibility and that we just need to have faith, hope and keep our composure. If anyone is interested in a t-shirt, please contact us for further details.
As a matter of interest, “Keep Calm and Cure Rett” is a deviation from the original “Keep Calm and Carry On” which was a motivational poster produced by the British government in 1939 several months before the beginning of the Second World War, intended to raise the morale of the British public in the aftermath of widely predicted mass air attacks on major cities.
Stay tuned for event pictures which we will post following the event. Thank you to everyone one for your continued support.