Tag: Rett Syndrome

Paris Mounties Supporting Event

On By ref4rettIn Rett SyndromeLeave a comment

On January 26, 2013 the Paris Mounties will be supporting Ref4Rett and the Ontario Rett Syndrome Association (O.R.S.A.) at their last regular season home game against the Dundas Blues.  Game time is 7:30 at the Brant Sports Complex in Paris, ON.

This event will consist of a raffle and a silent auction.  We are currently inquiring for event sponsorship, silent auction opportunities or donations.  The goal of the event is to raise $15,000.  I have personally made the commitment to donate $20 for every game that I officiate for the rest of my career to O.R.S.A.

Event Sponsorships are limited to 10 corporations at a cost of $300.00 each.  With an event sponsorship, you will receive and direct link from our website (www.ref4rett.com) including a logo, advertising on a pre-event posters (minimum of 50), an ad in the game day brochure, announcements on the Public Address system and additional social media exposure on Facebook and Twitter.

Silent Auction sponsors are also available, we will have 3 spots available at a $300 price point and 5 spots available at a $200 price point and the option to supply an item for the silent auction with a minimum value of $50.  With this sponsorship, you will receive a link on the website, mention at the silent auction table and in the game day brochure and additional social media exposure on Facebook and Twitter.  Please check the event tab on the website for silent auction items and a list of our corporate sponsors.

What is Rett Syndrome?

On By ref4rettIn Rett SyndromeLeave a comment

Rett syndrome (RTT) is a neurodevelopmental condition characterized by the loss of spoken language and hand use, coupled with the development of distinctive hand stereotypes. This disorder is seen in infancy and occurs almost exclusively in females. It is usually caused by a mutation of the MECP2 gene on the X chromosome. Rett syndrome is found in all racial and ethnic groups throughout the world. It affects one in every ten thousand live female births. Early developmental milestones appear normal, but between 6-18 months of age, there is a delay or regression in development, particularly affecting speech, hand skills and gait. A hallmark of Rett syndrome is repetitive hand movements that may become almost constant while awake. Other more common medical issues encountered include epileptic seizures, muscle stiffness, osteoporosis and scoliosis. Despite its multiple handicaps, Rett syndrome is not a degenerative disease. Many individuals with Rett syndrome live long into adulthood. There is currently no cure.